Guild Announcements

The 12th annual Cure for Mito Auction and Dinner will once again be held at the beautiful Willows Lodge in Woodinville, Washington on Saturday, September 13, 2014. Please click here for more information about the auction and hotel registration.

On Saturday, June 21st the third Cure for Mito Golf Tournament took place at Willows Run in Redmond, WA. Thanks to all of the participants, sponsors and donors, we raised almost $16,000! Thanks to everyone who made this event such a success!

Mitochondrial Conundrum: Novel Presentations and Treatments of Mitochondrial Diseases

The Second Biennial Mitochondrial Biology Conference will be taking place in Seattle on September 12th and 13th. The conference being hosted by Seattle Children's Research Institute in collaboration with our guild will bring together renowned leaders in the field of mitochondrial disease research and patient care. Discussion will focus on the newly recognized atypical presentations of mitochondrial diseases, with an emphasis on new therapies that are giving new cause for hope.

Join us and add your voice as we discuss the wide variation in presentation of mitochondrial diseases and novel therapies being tested. Families and patients are welcome. Join the conversation on Twitter at #mitoconference.

To register to attend the conference please click here.

Join us for the annual 'mito' family picnic at Cottage Lake Park in Woodinville on Saturday, July 26th.

We are pleased to announce we are accepting family grant applications with an application deadline of May 15, 2014. The Family Support Grant Program provides supplemental support to families living with mitochondrial disease whose children are treated at Seattle Children's Hospital. Click here for more information.

The 12th Annual 'Cure for Mito' auction will be held on Saturday, September 13, 2014. Click here for our online auction item donation form.

Applications are now being accepted to register your child in a summer camp program at Camp Korey. There are three sessions available for Mito children between June 30th and July 25th. For more information please go to the Camp Korey Summer Camp website. Don't miss this opportunity to give your child this amazing experience.

Raise awareness and support the guild by purchasing items from the 'Cure for Mito' Store. We currently have sweatshirts, hoodies and T-Shirts.

To read a "A tribute to Dr. Saneto" By Teri Rose click here (pdf)

The guild is very excited that Seattle Children's Hospital has now officially established a Program for Mitochondrial Medicine and Metabolism. This program provides care for children with mitochondrial diseases and metabolic disorders that affect mitochondria. Care for children with mitochondrial problems requires teamwork by many kinds of healthcare providers. The team of professionals available to help children with mito includes experts in neurology (with specialty in epilepsy), anesthesia, biochemical genetics (with specialty in inborn errors of metabolism), neuropsychology, neuroimaging, vision and eye movements, cardiology and gastrointestinal disorders.

Seattle Children's program combines expert clinical care based at Seattle Children's with cutting-edge research taking place at Seattle Children's Research Institute. Our clinicians and researchers work together closely. This is one reason we can offer state-of-the-art care and diagnosis and the latest treatments. These include new therapies being tested in clinical trials.

For more information please go to http://www.seattlechildrens.org/clinics-programs/mitochondrial-medicine/

Do you want to make a donation to the guild through your annual giving campaign at work? Or, make donations directly to the guild or donate items for the annual auction? Please visit the donations page.

What is Mitochondrial disease?

Imagine a plant that is unable to make use of the sun and water surrounding it. Over time the plant will not function properly and will show signs of distress, its leaves will begin to wilt and eventually it could die. That is what happens to people with mitochondrial disease.

Everyday, we consume food to make the energy our body needs to function. If our mitochondria are not functioning correctly then the body's organs begin to suffer.

A person's brain can be impaired, their vision could become dim, their muscles can twitch spastically or they can become too weak to walk or write, their heart could be weakened, and they might not be able to eat and digest their food.

For large numbers of people, especially children, this is precisely the situation in which they find themselves due to defects in the mitochondria.

Depending on which cells are affected, a child can suffer from strokes, seizures, gastro-intestinal trouble, blindness, deafness, muscle failure, diabetes, kidney and heart trouble, developmental delays, immune system problems and liver disease.

Whole systems within a body can begin to fail and the life of the child is compromised, changed or ended.

Experts estimate that one in 2,000 babies may inherit some kind of mitochondrial illness and some experts are saying that the number could be as high as 1 in 1,000. 10% to 50% of these children will die before their teenage years.

Currently there is no cure.

Defects in mitochondrial function have now been linked to many of the most common diseases of aging including Alzheimers, and Parkinsons.

For additional information on how you can help please contact Jill Herczog at j.herczog@nwmito-research.org or Steve Serex at s.serex@nwmito-research.org.



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Save The Date
July 26, 2014
Annual Mito Family Picnic
Camp Korey Summer Camps
June 30 - July 4
July 7 - 11
July 21- 25
September 12-13, 2014
Seattle Mitochondrial Biology Conference
Saturday
September 13th
Annual Cure for Mito Auction
In Loving Memory...
Drew Mussey 2008-2011
Justin Brubaker 1997-2009
Mariah Turner 1995-2009
Donald Dee Neuert
Click name for PDF Document