Click here for the 2013 'Cure for Mito' Auction Catalog
The 11th Annual 'Cure for Mito' auction will be held on Saturday, September 28th.
Click here to register for the auction, auction sponsorship, and catalog advertising information.
Click here for our online auction item donation form.
Camp Korey's Metabolic Disorders Family weekend is happening October 4th-6th. This amazing weekend is free for
families and there are still spots available. Visit the
Camp Korey website for more information.
Raise awareness and support the guild by purchasing items from the 'Cure for Mito' Store. We currently have
sweatshirts, hoodies and T-Shirts.
The Mitochondrial Research Guild of Seattle Children's is pleased to announce our new Family Support Grant
Program! The goal of this program is to provide supplemental support to families living with mitochondrial
disease whose children are treated at Seattle Children's Hospital. The application deadline has passed but check
back soon to apply for more grants in 2014. Click here for more information.
The second "Cure for Mito" Golf Tournament took place on Saturday, June 22nd at Willows Heron Links in
Redmond, Washington. It was a wonderful warm sunny day for the 65 participants and we raised over $11,000!
Special thanks to Weston Mui and Bryan Jung for organizing the event and to our Corporate Sponsors Duke's
Chowder House and E.K.Riley and all of our hole sponsors.
Click here for the event video recap.
Attention: Parents of Children with Mitochondrial Disease
One of our guild members, Brenda Senger is working on her doctorate degree in nursing and is conducting a
research study on the experience of caring for a child with a mitochondrial disorder for her dissertation topic.
We would like to support her in this effort and are asking that as many parents as possible take the time to
complete a set of surveys specific to the needs of parents caring for a child with a mitochondrial disease
(only one parent per household please). The set of surveys will take approximately 15-20 minutes to complete.
For more information about Brenda's survey click here.
To access the survey directly click here.
For additional questions about the survey or about Brenda's dissertation project, or
for technical assistance please click here to contact, Brenda via email.
Thank you for your support.
Check out the 2012 Seattle Children's Activities
and Achievements Report for the Mitochondrial Research Guild (PDF Document).
To read a "A tribute to Dr. Saneto" By Teri Rose click here (pdf)
The guild is very excited that Seattle Children's Hospital has now
officially established a Program for Mitochondrial Medicine and Metabolism.
This program provides care for children with mitochondrial diseases and
metabolic disorders that affect mitochondria. Care for children with
mitochondrial problems requires teamwork by many kinds of healthcare
providers. The team of professionals available to help children with mito
includes experts in
neurology (with specialty in epilepsy),
biochemical genetics (with specialty in inborn errors of metabolism),
vision and eye movements,
Seattle Children's program combines expert clinical care based at Seattle
Children's with cutting-edge research taking place at Seattle Children's
Research Institute. Our clinicians and researchers work together closely.
This is one reason we can offer state-of-the-art care and diagnosis and the
latest treatments. These include new therapies being tested in clinical
For more information please go to
Do you want to make a donation to the guild
through your annual giving campaign at work? Or, make donations directly to the
guild or donate items for the annual auction? Please visit the
What is Mitochondrial disease?
Imagine a plant that is unable to make use of the
sun and water surrounding it. Over time the plant will not
function properly and will show signs of distress, its leaves will
begin to wilt and eventually it could die. That is what happens to
people with mitochondrial disease.
Everyday, we consume food to make the energy our body needs to
function. If our mitochondria are not functioning correctly then
the body's organs begin to suffer.
A person's brain can be impaired, their vision could become
dim, their muscles can twitch spastically or they can become too
weak to walk or write, their heart could be weakened, and they
might not be able to eat and digest their food.
numbers of people, especially children, this is precisely the
situation in which they find themselves due to defects in the
Depending on which cells are affected, a child can
suffer from strokes, seizures, gastro-intestinal trouble,
blindness, deafness, muscle failure, diabetes, kidney and heart
trouble, developmental delays, immune system problems and liver
Whole systems within a body can begin to fail and the life of
the child is compromised, changed or ended.
Experts estimate that one in 2,000 babies may inherit some kind
of mitochondrial illness and some experts are saying that the
number could be as high as 1 in 1,000. 10% to 50% of these
children will die before their teenage years.
Currently there is no cure.
Defects in mitochondrial function have now been linked to many
of the most common diseases of aging including Alzheimers, and
For additional information on how you can help please contact Tricia Bertsch at
Steve Serex at