Guild Announcements

For more auction information on the auction, room accommodations, or to register, please click here.

Please join us Saturday, September 13, 2008 for our 6th Annual 'Cure for Mito' Auction and Dinner at the majestic and very private Camp Korey, formally known as the Nestle Training Center in Carnation, Washington. The sale of Carnation Farm from Nestle to Camp Korey was finalized on June 30, 2008. This historic 817-acre facility, originally Carnation Farm, includes spectacular views, award winning gardens, a fire pit and upscale overnight accommodations, all of which will be available exclusively for our guests this evening.

Camp Korey Slideshow

Camp Korey is a medically supervised camp staffed with physicians, nurses, and trained camp counselors for children suffering from serious and life threatening illnesses. The camp provides a week-long experience of camp programs and activities for children ages 7-16 at no cost to them. Click here for more information on Camp Korey.

Do you want to make a donation to the guild through your annual giving campaign at work? Or, make donations directly to the guild or donate items for the annual auction? Please visit the donations page.

The Mitochondrial Research Guild of Children's Hospital and Regional Medical Center is pleased to announce funding for its first small grant program. Visit our grants page to find out more.

What is Mitochondrial disease?

Imagine a plant that is unable to make use of the sun and water surrounding it. Over time the plant will not function properly and will show signs of distress, its leaves will begin to wilt and eventually it could die. That is what happens to people with mitochondrial disease.

Everyday, we consume food to make the energy our body needs to function. If our mitochondria are not functioning correctly then the body's organs begin to suffer.

A person's brain can be impaired, their vision could become dim, their muscles can twitch spastically or they can become too weak to walk or write, their heart could be weakened, and they might not be able to eat and digest their food.

For large numbers of people, especially children, this is precisely the situation in which they find themselves due to defects in the mitochondria.

Depending on which cells are affected, a child can suffer from strokes, seizures, gastro-intestinal trouble, blindness, deafness, muscle failure, diabetes, kidney and heart trouble, developmental delays, immune system problems and liver disease.

Whole systems within a body can begin to fail and the life of the child is compromised, changed or ended.

Experts estimate that one in 2,000 babies may inherit some kind of mitochondrial illness and some experts are saying that the number could be as high as 1 in 1,000. 10% to 50% of these children will die before their teenage years.

Currently there is no cure.

Defects in mitochondrial function have now been linked to many of the most common diseases of aging including Alzheimers, and Parkinsons.

For additional information on how you can help please contact Jill Herczog at j.herczog@verizon.net or Ashley Farrington at a.farrington2@verizon.net.



 

Saturday, August 16
Annual Mito Family Picnic
Saturday, September 13
The 6th Annual Cure for Mito Auction
Maclin Speech from 5th Annual Cure for Mito Auction by Dave Gromley
Click here to learn about Maclin and one family's experience with mitochondrial disease.